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Participatory Medicine: Text of my speech at the Connected Health...

I should have posted this when I posted my slides, but better late than never. Remarks by Susannah Fox of the Pew Research Center’s Internet & American Life Project at the Connected Health...

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Why is participatory medicine such a tough sell?–Susannah Fox

Kevin A. Clauson, Pharm.D. is an associate professor at the College of Pharmacy and adjunct associate professor at the College of Medicine – Biomedical Informatics Program at Nova Southeastern...

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Clinical trials jump on the Cluetrain

When the organizers of a National Cancer Institute workshop on social media and clinical trials invited me to speak, they said: We have an ethical obligation to understand social media. Social media is...

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Teens and young adults: In their own words

The Hopelab/Well Being Trust report is based on a nationally-representative online survey which we designed to have as many open-end questions as we could squeeze into it. We were overwhelmed (in a...

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The business case for paying attention to teens

Three blockbuster reports focused on teens and technology have come out recently: Teens, Social Media & Technology 2018, by Monica Anderson and Jingjing Jiang (Pew Research Center) Digital Health...

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Social media as a platform for hope

I’ve been thinking about how people react to a crisis. How, if we are lucky, we find ways to lend and borrow expertise to get through it. And how we lend and borrow courage. In the American South,...

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Helping people find the needle in a data haystack

One of the most important customer-service lessons I ever learned was from E-patient Dave: when it comes to disseminating research, give people what they need, not what you want to create. About a...

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Fact sheet: U.S. teens and adults at the intersection of health and technology

In an earlier post I shared the history of the “fact sheets” I maintain about health and technology. I thought I’d share a few highlights from the grandmother of them all — key data points on U.S....

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Acceptable uses of health data

My former colleagues at the Pew Research Center continue to publish the best research on the impact of the internet on American society, bar none. My fandom extends to creating a fact sheet...

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